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About this condition

Neurofibroma

This is information, not medical advice. A doctor or genetic counsellor is the right person for decisions.

What this means, in plain words

Neurofibroma is a rare condition.

No two people with this condition are the same, and not everything on this page will apply to everyone.

You are not alone

Looking up how many people live with this…

People you can contact

Looking for patient groups…

Things you can do this week

Questions to bring to your doctor

  1. Is there a treatment for this condition, or a study we could join?
  2. Should we see a genetic counsellor about what this means for the rest of the family?

Studies looking for participants

The detailed view: how it works in the body, related diseases and research ideas.