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About this condition

Herpes simplex encephalitis

This is information, not medical advice. A doctor or genetic counsellor is the right person for decisions.

What this means, in plain words

Herpes simplex encephalitis is a rare condition linked to the TBK1, TICAM1, TLR3 and 2 more genes.

No two people with this condition are the same, and not everything on this page will apply to everyone.

You are not alone

Looking up how many people live with this…

People you can contact

Looking for patient groups…

Things you can do this week

Questions to bring to your doctor

  1. Has a gene change been found, and is it the kind usually seen in herpes simplex encephalitis?
  2. Is there a treatment for this condition, or a study we could join?
  3. Should we see a genetic counsellor about what this means for the rest of the family?

Studies looking for participants

The detailed view: how it works in the body, related diseases and research ideas.